Our son Landyn was born on November 2, 2013. There was never any indication that anything was wrong during the entire pregnancy or delivery. However, when Landyn was 3 months old we started noticing that he wasn’t reaching developmental milestones. At first we thought he was just a lazy baby. His doctor at the time always said he was doing great and to keep doing what we were doing Over the next few months Landyn’s development did not improve. Family members kept recognizing things that he wasn’t doing for a baby his age. We continued to deny that anything was wrong thinking he was a lazy baby However, the more we thought about it, we knew they were right. On the day of his 6 month checkup, I told Ben that I refused to take him back to his current doctor and that I wanted a new one.
Landyn was examined thoroughly by his new doctor. She told us that she thought it could be Cerebral Palsy. She explained that she couldn’t diagnose him with CP because that wasn’t her place to. Instead, she referred us to a pediatric specialist and had us start Landyn on Physical Therapy. The pediatric specialist told us that Landyn’s motor skills were like that of a 2-3 month old and his speech was like that of a 5 month old. He also brought up Cerebral Palsy as a possible diagnosis and referred us to an orthopedic specialist.
The orthopedic specialist told us she believes that Landyn does indeed have Cerebral Palsy and is mostly right side affected. At this point, the only thing that Landyn can currently do is roll from back to front, which he has been doing since he was six months old. We want to give Landyn every opportunity we possibly can to overcome this condition, become as independent as possible, and be able to do things like playing with his big sister.
Although Landyn has been involved in physical therapy, we have been searching for additional treatment options for him to improve his quality of life. What we discovered is Hyperbaric Oxygen Therapy (HBOT) and Conductive Education (CE). Both have proven to have dramatic effects for children like Landyn. We have recently learned that there is a facility right here in Northwest Ohio, called Sara’s Garden, that provides both of these services and specializes in working with children with Cerebral Palsy. We are just praying for the opportunity for Landyn to benefit from these treatments.
Despite the success that the Hyperbaric Oxygen Therapy and Conduction Education have had in treating individuals with Cerebral Palsy, insurance companies in the United States do not recognize them as being therapeutic for the treatment of Cerebral Palsy and therefore will not cover the cost for treatments. That is why we could really use your help. HBOT for Landyn is only $110 per treatment and Conductive Education is only $35 per hour at Sara’s Garden. However, since out plan is for him to receive at least 40 HBOT treatments and 60-80 hours of CE, that cost adds up quickly.
If you could assist us with the cost (or even just part of the cost) of a single $110 HBOT treatment or $35 hour of CE, it would help reduce our overall expenses greatly. 100% of the funds received go into an account in Landyn’s name and will be used for his treatments. Any contribution made would be considered a tax-deductible donation as Sara’s Garden is a 501(c)(3) non-profit facility. Checks can be made out to Sara’s Garden with Landyn’s name on a sheet of paper accompanying the check. Please do NOT write his name directly on the check. You can also donate online via credit card by visiting the Sara’s Garden website at http://SarasGarden.org/LandynKessler/.
Thank you so much for considering the support of Landyn’s treatments.
Kim & Ben
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